Traveling hook III- raising awareness for FA . UPDATE !!!!post #509

angelfire · July 10, 2008

The hook is still in Ireland, Inga is finished with it and is ready to send it back to the states.

grannyannie · July 10, 2008

The hook is still in Ireland, Inga is finished with it and is ready to send it back to the states.

Thanks for the update! :hug

Krystal16 · July 10, 2008

Bonnie,

Where is the list that says who gets it in what order?

PraiseJesus · July 18, 2008

Bonnie,

Where is the list that says who gets it in what order?

I have just moved so I will need to send my new address. Who should I send that info to?

angelfire · July 18, 2008

to me just like you di the first time.

The list is being expanded on as I had to revise ti after sending the hook to Ireland. I am hoping to have a new list completed by the middle of next week.

jenuwhiner · July 25, 2008

If you are still taking new people I would be happy to help out.

PraiseJesus · July 28, 2008

Hi :hook

Thanks for the update! I will send you my new address.

As some of you may or may not know, I am living with this condition. I thought I'd share some awesome news with you all. In an email that I received from a support group I'm in I read that Canada has approved a drug for the treatment of Friedreich's Ataxia! Isn't that exciting?!?! The drug is believed to increase the supply of energy to cells in the body. Additionally it has antioxidant properties and may protect the cells in the body which are damaged by the disease. The drug is set to be launched at the end of October of this year.

More exciting news from me - I'm pregnant!!!! :heart :yay :heart

wiz3283 · July 28, 2008

Hi

Thanks for the update! I will send you my new address.

As some of you may or may not know, I am living with this condition. I thought I'd share some awesome news with you all. In an email that I received from a support group I'm in I read that Canada has approved a drug for the treatment of Friedreich's Ataxia! Isn't that exciting?!?! The drug is believed to increase the supply of energy to cells in the body. Additionally it has antioxidant properties and may protect the cells in the body which are damaged by the disease. The drug is set to be launched at the end of October of this year.

More exciting news from me - I'm pregnant!!!! :heart

This is wonderful news.... both the new drug and the new baby. Congrats!!!! :clap I really hope that this new treatment will be the answer for you as well as everyone stricken.

grannyannie · July 29, 2008

Hi

Thanks for the update! I will send you my new address.

As some of you may or may not know, I am living with this condition. I thought I'd share some awesome news with you all. In an email that I received from a support group I'm in I read that Canada has approved a drug for the treatment of Friedreich's Ataxia! Isn't that exciting?!?! The drug is believed to increase the supply of energy to cells in the body. Additionally it has antioxidant properties and may protect the cells in the body which are damaged by the disease. The drug is set to be launched at the end of October of this year.

More exciting news from me - I'm pregnant!!!! :heart

Wonderful news! And congratulations!!!! :hug

Cherri · July 29, 2008

Hi

Thanks for the update! I will send you my new address.

As some of you may or may not know, I am living with this condition. I thought I'd share some awesome news with you all. In an email that I received from a support group I'm in I read that Canada has approved a drug for the treatment of Friedreich's Ataxia! Isn't that exciting?!?! The drug is believed to increase the supply of energy to cells in the body. Additionally it has antioxidant properties and may protect the cells in the body which are damaged by the disease. The drug is set to be launched at the end of October of this year.

More exciting news from me - I'm pregnant!!!! :heart

That is wonderful news! Congrats on the baby. You must be soooooo excited!!! :c9

angelfire · July 30, 2008

PraiseJesus, congrats on your future and hearing that they are actually have prescriptions for FA is encouraging.

I am working one the list tomorrow while I am staying in my room. It is hot and I have been sick so the air conditioning in my room

(the only one in the house) is a necessity with the heat. I hope to have the traveling list ready by Friday and since the hook has now returned from Ireland, it will be off to the first person on the list. :cheer

angelfire · July 31, 2008

Since I will be making the traveling schedule today, is there anyone that does not want it during the Crochet Games of Ancient greece?

Krystal16 · July 31, 2008

I'll be "gone".

segi1974 · July 31, 2008

I am doing the Crochet Games so I will pass on getting it at that time.

angelfire · July 31, 2008

OK, I have both of those. Thank you.

jimbo · July 31, 2008

Great news about the baby!!

And good to hear about the Canadians too. Goes to show how close they're getting. And what's amazing is that most of the research that led to Idebenone (the key part of the Canadian drug) was funded by folks like us. Jessica's taking a form of Idebenone now and the docs are saying that its slowing the deterioration of her heart muscle, which is great news. They're soooo close. Our project comes at a really good time.

Krystal16 · July 31, 2008

Jimbo...

I just went onto your blog to see if I could get in on the bidding. I just came by some money that I didn't expect to have and have FINALLY decided to reward myself...

*sigh* Only to find out bidding is closed.

Can you inform me when you might have another set to bid on?

angelfire · July 31, 2008

If you are still taking new people I would be happy to help out.

yes we are taking as many people as we can get to volunteer.:clapyou can pm me your info name and address and I will get you on the list.

angelfire · July 31, 2008

I have the traveling list made with the addresses that I have. The ones listed in the bottom of the list in red I still need addresses for and they will be added in the order as soon as I have the addresses. If your name is not in red and you have a different Crochetville name please inform me as I am not sure of Crochetville names when they were not in the addresses sent to my e-mail address.

Thank you for your patience. I will sending the hook to ChrissyF first

jenuwhiner · July 31, 2008

yes we are taking as many people as we can get to volunteer.:clapyou can pm me your info name and address and I will get you on the list.

You have been pm'd. :yay

angelfire · July 31, 2008

thank you, you have been added into the correct order

:cheer

wiz3283 · August 2, 2008

I hadn't realized I never sent you my addy. I just emaild it to you. Please add me to the list. Thanks !!!!! :hug

angelfire · August 5, 2008

Chrissy,

The hook is headed your way. It was sent out yesterday and hubby left DC# in his work van. I will post it later.

Have fun.

Krystal16 · August 5, 2008

It's on the road again...

I just can't wait,

the hook's on the road again,

I like to hook and

make some afghans with my friends,

and I just can't wait,

the hook's on the road again!!!

:cheer

angelfire · August 5, 2008

It's on the road again...
I just can't wait,

the hook's on the road again,

I like to hook and

make some afghans with my friends,

and I just can't wait,

the hook's on the road again!!!

thanks for the smile...

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Traveling hook III- raising awareness for FA . UPDATE !!!!post #509

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