Jump to content


  • Content Count

  • Joined

  • Last visited

About Schmetterling

  • Rank

A Few Things About Me

  • Real name
  • Short bio
    I'm a young mom on disability. I'm fighting neurological disease; it's winning & I need distraction.
  • Location
  • Hobbies
    Crochet, sewing, vegetable gardening.
  • Favorite hook type
  • Favorite projects
    Charity (caps and kitchen supplies)
  • Crocheting since...

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Your encouragement is appreciated, I am sure! Thanks for any help you are able to give. I can also be reached at daswunderkind at cox dot net. Just for a reminder if anybody is up for it, I am always in great need of assistance locating hospitals around the U.S. that have neurosurgery/ology departments that would like to receive hats to give to their patients. I have a letter ready to go. All a person needs to do is go to the website of their local hospital(s), get the email address to volunteer department, and email the letter I have ready. If anyone is willing to do this please let me know and I will send the letter to you. I would love to add some hospitals to the list for all of you wonderful volunteers!
  2. Stacey, thank you so much for the kind words. My prayers are with you that you will that you will never have to go through another neurosurgery. The project is near and dear to my heart, as I'm sure you can understand. I get to talk to so many people going through the same thing when they write to ask for a hat, and to help when they ask for advice on how to get through the difficult times ahead. It is an honor to see them through, to hear they're getting stronger all the time. And it is a privilege to be a friend to the family when on occasion things do not go well, such as recently when a 2 year old hat recipient passed away shortly after her surgery. Thank you for sharing your experience with me. I appreciate the encouragement for my project. At times it's discouraging because of the progressive nature of my disorder but I know I've got to try to just keep swimming (some Finding Nemo wisdom) no matter how hard. Best wishes and prayers to you! :2hug
  3. alibra, thank you so much for the terrific hats you send for the brain surgery hat project. I know that the patients who receive them will really appreciate your kindness, and I am grateful for your help. You did a beautiful job! Thank you, all of you, who have been so kind in helping to make hats whether it was one time or whether you are still sending hats to hospitals. You are making a huge difference in the lives of my fellow brain surgery patients.
  4. Thank you so much to all the wonderful people that help me with my project. We have touched the lives of more than 1,000 brain surgery patients. Having had many myself, I can tell you the kindness you show during such a traumatic and frightening time will never be forgotten. I am still searching for more hospitals with neurosurgery departments who would like to receive hats for their brain surgery patients. I have a letter that I send to hospitals; the problem I encounter is that of course I can't know of hospitals everywhere. If anyone can help with this that would be fantastic! Either A) send me the websites of hospitals in your area and I'll contact them, or B) contact me for the letter I use, and you can send it to the Volunteer or Neurosurgery Dept at the hospitals where you live; every time a response is received let me know and I'll note it in my file. Again, thank you for your kindness. You have made this project come alive and it brings confidence and smiles to men, women, and children who really need it.
  5. Thank you very much for sending these wonderful hats! I was gone when they arrived, so I am sorry for the delayed apology. I was in Oregon with my children, spending a couple weeks with my mom and taking care of a lot of things having to do with the recent death of my grandmother. It's been a rough time but my mom really needed this time together. She hadn't spoken to her mom in several years, and it hit her hard. Then the Oregon trip went a little crazy for me on my 2nd flight to get to OR. I found a way to really tick off 300 people by making them just sit on an airplane after landing...trust me though, I would have given anything for this to NOT have happened! I spent nearly the entire 2 1/2 hours getting violently sick and having horrible abdominal pain on that 2nd flight. The flight attendants were worried and knew there was a dr on board and had her come check me out, and they had the pilot have an ambulance meet the plane when we landed. When we got there, he told everyone to stay in their seats until paramedics could take a passenger off the flight. In came EMTs, who loaded me up, carried my bags and 2 children off the plane. Right outside the gate, they got me started with IVs, pain meds, while police brought my parents up from the baggage claim--to claim my children instead. They gurney gave me a ride through the airport, outside to the ambulance, and to the hospital, where I learned I had several marble-sized kidney stones just like I had surgery for in September, but there was one bigger than those, the size of two marbles put together. Now it makes sense why I was in so much pain, worse than when my appendix ruptured a couple years back. I've been back home a few days now but it's been filled with appointments with my urologist, scheduling more tests, etc. Anyway, when I got back to AZ and saw your package, it was such a nice thing to come back to. You did such a beautiful job. I already sent some to a young woman scheduled for surgery soon. I know she will appreciate them tremendously! Is it too much trouble if I ask where the patterns are from? They are lovely! Thank you again! It was very kind of you to send hats for patients.
  6. Hi there! For anyone without a hospital to donate to, here are some hospitals that responded to my letter and said they would like to receive caps to distribute to their brain surgery patients. Also, I would very much like to add to this list of hospitals. If anyone is willing, I need help, in 1 or 2 ways: you could 1) go to the websites of the hospitals in your area, find the email address of the volunteer department, and email the letter I have ready. I can send it to you, which will save you a lot of time since another won't have to be written. or 2) Send me the name(s) of the hospital(s) and the city it's in. Then I can go ahead and send them the letter I wrote. Between the two of them, hopefully we can get some more hospitals on the list, send hats to lots more patients, and make a difference in the lives in SO many more brain surgery patients! And let me say, that one little pretty thing on my head was the one positive thing in my day, staring at myself months in the hospital, ugly, and alone, knowing I wasn't ever going to be the same. There was knowing too there were more surgeries coming, but that one cap, that one distraction, made all the difference in the world. http://www.bevscountrycottage.com/neuro-caps.html If anyone wants the letter I wrote so you can just send it to the hospitals near you, send me an email please. Give me a couple days to write back. daswunderkind at cox dot net. As for having hats, if anyone wants to send any here instead, I do keep some at my house as well because I get a lot of requests sent to me from patients who are sent to my brain blog. Email for my addy. Thanks so much!
  7. My prayers are with your mom and all of your family. I know it's a huge impact on them as well as the patient. It's certainly molding my children, shaping who they will grow up to be. They were only in pre-school when my surgeries started, and now having had more than 20 it's become the norm for all of us, even the kids (now in elementary school). My household knows though that just because it's become our normal, it doesn't mean that I'm ok with it, that I'm not afraid, or that recovery from any one surgery will anything like another. They know that each is different, and recoveries will always be unique, so my family should find out how they can best help me after each surgery because each is different depending on what part of the body, what part of the brain, how things went, etc. I pray for the surgeries, and that the recoveries go smoothly as well. Hugs, K
  8. Hi everybody! I hope you are doing well. I wanted to stop in and thank you for all the great things you have done, the difference you have made for all the brain surgery patients across the US. They can still be sent to the hospitals at the neuro webpage that was set up, to your local hospital, or to me and I will distribute them locally. I also send them directly to the newly-diagnosed patients who write me through my blog and request caps for their upcoming surgeries, which is quite often. (It's hard to keep up with the demand on top of my own medical issues so I really appreciate receiving a couple hats now and then. It's a huge help!) Things are going ok here. I had minor spine work earlier this month, and will have more 4/28. I took a spill a few weeks ago so a knee repair will soon follow. The kids are doing well. My grandma passed away Sunday unexpectedly and I'm still kind of shocked. I was up most of the night. It's morning now though and the kids are starting to get up so I guess I get off here. Thanks again to everyone, and know that you have made life brighter for so many people! I hope the patterns that I post every couple pages as my favorites have been helpful. If you have a favorite, please share! I'd love to see them, the more the merrier! -K
  9. Yikes! Yep I did the same thing, blogged about it last night. I posted the pic I took at one of the supermarkets, how we kept encountering nothing but empty shelves where the water used to be! Be safe, keep warm! Hopefully we'll have gas for heat by next week! Thanks for your help with the caps!
  10. Hi, thank you for your help with my project! I really appreciate it! I post the following patterns about every two pages in this thread and it seems I am due again! Can't stay long, need to climb back under a pile of blankets with the rest of my family. I'm in Tucson and we awoke yesterday to 19 degrees, -5 wind chill, no water, and a major gas leak so no heat either. Late last night we finally got cold water back, no hot, but it may be days before we get any gas back. We are using camping kettles out on the patio grill to heat water, then pouring it into thermos bottles. Then we use that for hot chocolate to warm ourselves. We drove for over an hour yesterday to find a store that still had any water left to buy. All they had left were the little :water individual 16.9 oz ones but that's better than nothing. We're using that to wash our hands and drink, etc. We closed off all the rooms and all 4 of us (2 young children) slept in our bedroom to keep the body heat in one room. Wearing multiple shirts, pants, a crocheted cap, and two pairs of socks each, we piled up on the bed, dogs too :dog along with every afghan in the house piled on top of us. The school had to shut down b/c of no water or heat, being a safety and health concern, so all four of us are here, still trying desperately to keep warm. Off I go to find another scarf to add on to try to warm up my neck. It's like I can feel every inch of the 5-inch diameter plate in my head, two 18-inch rods in my spine, and the 36 screws holding it all together. I think it's all frozen! It's going to be a long few days. Crochet patterns: http://www.rheatheylia.com/index.php?page=patterns&id=10 http://www.lionbrand.com/patterns/70732AD.html http://yarnchick.blogspot.com/2010/07/my-guys-hat.html http://www.crochetme.com/belliveau-cove-gulf-shores http://www.lionbrand.com/patterns/80752AD.html?noImages= Tons of hats: http://www.bevscountrycottage.com/cancercaps.html Go here: http://www.jpfun.com/index.shtml and type in Addison to get the pattern for Addison Hat. Hard to get to but a great pattern. A great site is headhuggers.com. They have patterns for knitters, crocheters, and some for those who sew too!
  11. I responded to all my PMs, though it did crash a couple times. If I missed anyone, please do let me know ok? Thanks!
  12. Hi everyone. Just wanted to say hello and thank you to those who are helping with this project! It's making a great difference. BTW apparently there is a nice person at this site who is helping out by providing my snail mail address to people who want to send caps my way so I can distribute them; unfortunately whomever it is didn't see my posts over a year ago about my move, so there have been some difficulties with lost and returned packages, packages that have had to be paid for twice because of redelivery, etc. If caps are being sent to me, please be sure the street address no longer involves that huge long name of a gemstone; the "new" street is a female's name. Thanks!
  13. Help! A kind person in Pennsylvania recently sent a shipment of lovely hats for me to distribute to the hospitals. I don't know whom to thank though, as there was no return address on the package and no note or anything on the inside. If you live in a PA town starting with the letter "Y" (think that's what the blurry postmark says) and sent hats recently, please jot me a note. I just want to send a thanks and cyber hug, and let you know how beautiful your work is!
  14. Personally I prefer fragrance free. You never know if someone may have issues such as multiple chemical sensitivities, eczema, etc. Thanks for your help!
  15. Thanks for the bump! I appreciate everyone who has been so helpful in keeping this project such a success since its humble beginning. For people who are new, please read the story of its start at the beginning of the post to understand why I started it (my story as a multiple brain surgery patient). Here are some great patterns: http://www.yarncat.com/Durango.html http://www.lionbrand.com/patterns/70732AD.html http://naidascrochet.tripod.com/patterns/myguy.html http://www.yarncat.com/MFH-Muriel.html http://www.crochetme.com/belliveau-cove-gulf-shores http://www.jpfun.com/patterns/free/w...disonhat.shtml http://www.bevscountrycottage.com/cancercaps.html A great site is headhuggers.com Thanks again everyone. Sorry I've not been around but if you are around my blog I know you are aware of the health & home stuff. Hugs to all, best wishes to you and yours, K
  • Create New...